Sharing your health information

Privacy guidance when selecting third-party apps

We are required to provide you with access to detailed information about your health history through a “Patient Access API.” While you are a current member, you may access this information by downloading an application (app) on your smartphone, tablet, computer, or other similar device. The information available through the Patient Access API includes information we collect about you while you have been enrolled in certain lines of business since January 1, 2016. The information includes the following information for as long as we maintain it in our records:

  • Claims and “encounter” data1 concerning your interactions with health care providers; and
  • Clinical data that we collect in the process of providing case management, care coordination, or other services to you.

The information we will disclose may include information about treatment for substance use disorders, mental health treatment, HIV status, or other sensitive information.

It is important for you to understand that the app you select will have access to all of your information. The app may not be subject to the Health Insurance Portability and Accountability Act (HIPAA) rules and other privacy laws, which generally protect your health information. Instead, the app’s privacy policy describes self-imposed limitations on how the app will use, disclose, and (possibly) sell information about you. It is important for you to know once we send your data to the app, we no longer control how the app uses or shares your information. If you decide to access your information through the Patient Access API, you should carefully review the privacy policy of any app you are considering using to ensure you are comfortable with what the app may do with your information.

Blue Shield of California asks that any app developer planning to access the Blue Shield Patient Access API attest that it complies with basic privacy and security standards, but you can consent to sharing your data with the app even if they do not attest. When you access a third-party app and select to share your data, Blue Shield of California will provide a warning to you if an app did not attest that it complies with basic privacy and security standards.

Things you may wish to consider when selecting an app:

  • Will this app sell my data for any reason?
  • Will this app disclose my data to third parties for purposes such as research or advertising?
  • How will this app use my data? For what purposes?
  • Will the app allow me to limit how it uses, discloses, or sells my data?
  • If I no longer want to use this app, or if I no longer want this app to have access to my health information, can I terminate the app’s access to my data? If so, how difficult will it be to terminate access?
  • What is the app’s policy for deleting my data once I terminate access? Do I have to do more than just delete the app from my device?
  • How will this app inform me of changes in its privacy practices?
  • Will the app collect non-health data from my device, such as my location?
  • What security measures does this app use to protect my data?
  • What impact could sharing my data with this app have on others, such as my family members?
  • Will the app permit me to access my data and correct inaccuracies? (Note that correcting inaccuracies in data collected by the app will not affect inaccuracies in the source of the data.)
  • Does the app have a process for collecting and responding to user complaints?

If the app’s privacy policy does not satisfactorily answer these questions, you may wish to reconsider using the app to access your health information. Your health information may include very sensitive information. You should therefore be careful to choose an app with strong privacy and security standards to protect it.

Covered entities and HIPAA enforcement

The U.S. Department of Health and Human Services’ Office for Civil Rights (OCR) enforces the HIPAA Privacy, Security, and Breach Notification Rules. Blue Shield of California is subject to HIPAA as are most health plans and health care providers, such as hospitals, doctors, clinics, and dentists. You can

Apps and privacy enforcement

An app generally will not be subject to HIPAA. An app that publishes a privacy notice is required to comply with the terms of its notice, but generally is not subject to other privacy laws. The Federal Trade Commission Act protects against deceptive acts (such as an app that discloses personal data in violation of its privacy notice). An app that violates the terms of its privacy notice may be subject to the jurisdiction of the Federal Trade Commission (FTC). The FTC provides information about mobile app privacy and security for consumers.

If you believe an app inappropriately used, disclosed, or sold your information, you should contact the FTC. You may file a complaint with the FTC.

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